Although we’ve accomplished a great deal over the years, the fact remains that while colorectal cancer (CRC) is preventable, it continues to be the second leading cause of cancer deaths in Canada. Moreover, we are faced with new challenges, such as rising rates of CRC in young adults and keeping abreast of advancements in research and development.
Our various initiatives allow CCC to continue to advocate for the well-being of CRC patients and those at risk:
- Foods that Fight Cancer Program(FTFC) allows Canadians to incorporate healthy, nutritional and fun choices into their daily diets. It can furnish Canadians with recipes that will assist them in making the right food choices in helping them to prevent colorectal cancer and other cancers as well. The anti-cancer properties contained in the recipes have the additional benefit of increasing the chances of surviving cancer in the long run.
- Patient Values Project in Health Technology Assessment will allow Colorectal Cancer Canada and other cancer patient groups in Canada and abroad to better capture the patient perspective when a cancer drug comes under review by a health technology assessment (HTA) authority. The Project aims to define, measure and weigh patient values and preferences and then have those values/preferences incorporated into the HTA patient group submission.
- Patient Group Pathway Model to Accessing Cancer Clinical Trials is a Colorectal Cancer Canada (CCC) initiative which aims to increase recruitment, participation and retention rates of cancer clinical trials within Canada. A consensus meeting and working group meeting were hosted by CCC in 2017 and recommendations on increasing uptake have been issued and due to be published in Current Oncology in 2018.
- Real World Evidence (RWE) is the third component to our patient-centric national “Trilogy” initiative. It focuses on the ability to collect data from clinical trials so that the best treatment paths can be uncovered for patients in clinical practice. CCC will be dedicating a conference to RWE to continue to capture the patient perspective across the continuum of colorectal cancer care.
- The Get Personal campaign promotes awareness and education for the need to get genetically tested as soon as a stage IV colorectal cancer patient is diagnosed with the disease. Identification of biomarker status is important in properly managing advanced disease. More importantly, identifying a patient’s genetic status will ensure a personalized approach to their care and treatmentof their disease.
- Jason Fund Program : In recognition of the unique challenges experienced by young adults afflicted with cancer between the ages of 16 to 30 years old, the Jason Fund is there to lend a helping hand. The Jason Fund promotes not only awareness of cancer in youths but a support network among and for youths with cancer in the form of social and financial services, patient support groups and it strives to promote excellence in the treatment and management of the disease in our society’s youth.
- The Never Too Young (N2Y) Campaign brings much-needed awareness and education to the forefront when it comes to young-onset colorectal cancer. Colorectal cancer is on the rise in young people and we’re committed to learning more and providing support for those currently in their fight.
- The Wendy Bear Patient Assistance Program is named in memory of the wife of hockey legend Darryl Sittler, a long-time supporter of our charity. Wendy was instrumental in assisting with raising awareness and funds for Colon Cancer Canada before her passing in 2002. She wanted to ensure that anyone diagnosed with colorectal cancer would have the necessary supports to help them manage their life with this disease. It is in her memory that the Wendy Bear was created with 100% of the proceeds from the sale of the bear going directly to support palliative care patients in need.